National Patient Advocate Foundation has a working relationship with over 100 organizations in Washington DC. Nancy Davenport-Ennis, President & CEO of NPAF, as well as NPAF staff members, have been appointed to several federally chartered or appointed working groups to provide public input to national policies. These appointments include:
- Alliance for Quality Psychosocial Cancer Care - Established in 2008 as an informal coalition of professional and advocacy organizations engaged in psychosocial cancer care issues. The primary goal of the Alliance is to implement recommendations from the Institute of Medicine (IOM) report entitled, Cancer Care for the Whole Patient, which was released in October 2007 and to ensure that psychosocial care is integrated into the medical standard of care for people with cancer. NPAF has been a member since 2008.
- Alliance for a Stronger FDA - The alliance was organized in January 2008 after two separate alliances merged together. Alliance members share mutual concerns related to the FDA's diminished resources and increasing workload, the erosion of public health protections, and slowed innovation at the expense of the patient. The Alliance is urging Congress to increase the FDA's appropriations in order to ensure adequate funding for new public health initiatives, to protect patients, and assure access to safe medical therapies. NPAF has been a member since 2008. More Information
- Access to Medical Imaging Coalition (AMIC)- The coalition was organized in 2006, soon after Congress passed the Deficit Reduction Act of 2005, which significantly reduced the level of funding for medical imaging services provided in independent imaging facilities and physician offices. AMIC represents more than 75,000 patients, physicians, and medical providers throughout the U.S. The coalition conducts public affairs, advocacy, and educational activities to address these payment reductions. NPAF has been a member of AMIC since 2006. More Information
- Campaign for Better Care - Established in 2009 by the National Partnership for Women & Families, the campaign works to ensure that the needs of patients and their family caregivers are front and center in the delivery of health care and specifically that our system provides better, more coordinated care for older adults with multiple health conditions. The goals of the campaign are to (1) build a strong and lasting consumer voice for better care, by mobilizing consumer advocates, older adults and their families and (2) make improvements in the health care system so that it delivers high-quality, comprehensive, and coordinated care, especially for vulnerable older adults and people with chronic conditions. NPAF has been a member since 2009.
- Campaign for Public Health - Launched in 2004, the campaign is comprised of prominent leaders in the public health and business communities who are dedicated to advocating for legislation that will accelerate the growth of federal appropriations for the Centers for Disease Control and Prevention (CDC). NPAF has been a member of the Campaign since 2008. More Information
- Cancer Leadership Council (CLC) - Formed in 1993 to voice the concerns of cancer survivors during the health care reform debate. The CLC is engaged in a wide range of issues, but they all relate to a fundamental goal of ensuring cancer patients access to high quality care. More than thirty-three groups, including cancer patient organizations, professional societies, and research organizations, have joined the CLC and help set the agenda and develop positions which represent the consensus of the groups. NPAF has been a member of CLC since 1996. More Information
- Coalition for Imaging & Bioengineering Research (CIBR) - The coalition was created to foster advances in imaging and bioengineering. CIBR members recognize the enormous potential to further revolutionize patient care and biomedical research through the development of new technologies by the National Institute of Biomedical Imaging and Bioengineering, other NIH institutes, and throughout the federal research community. CIBR members will advocate for research that can bring the technology of tomorrow to the health care needs of today. More Information
- Director's Consumer Liaison Group (DCLG) - Members are involved in cancer advocacy and represent a constituency with which they communicate on a regular basis. The group advises, assists, consults with, and makes recommendations to the Director, National Cancer Institute, from the perspective and viewpoint of cancer consumer advocates (four year appointment). Nancy Davenport-Ennis currently serves this appointment. More Information
- Health IT Now! Coalition - Established in June 2007 to promote the rapid deployment of health information technology (Health IT), the Coalition unites patients, practitioners and employers. Former Representative Nancy Johnson and former Senator John Breaux are co-chairs of the Coalition which supports federal legislation to promote a connected Health IT system. NPAF has been a member since 2007. More Information
- Medicare Evidence Development & Coverage Advisory Committee (MedCAC) - Chartered in 1998 by the Secretary of Health and Human Services and advises the Center for Medicare and Medicaid Services (CMS) on whether specific medical items and services are reasonable and necessary under Medicare law (two year appointment). NPAF advocated for patients to serve as voting members on MedCAC in 2005. As a result, today four national patient groups have voting seats on MedCAC with NPAF holding one of those seats. Nancy Davenport-Ennis is the current appointee. More Information
- National Health Council- The National Health Council (NHC) provides a united voice for the millions of people with chronic diseases and disabilities and their family caregivers. The NHC is committed to advocating for health care that will: Cover everyone, Curb costs responsibly, Abolish exclusions for pre-existing conditions, Eliminate lifetime caps on benefits, and Ensure access to long-term and end-of-life care.More Information
- One Voice Against Cancer - A collaboration of national non-profit organizations representing millions of Americans. The coalition delivers a unified message to Congress and the White House on the need for increased cancer-related appropriations. NPAF has been a member since 2008. More Information
- Operational Efficiency Working Group of the National Cancer Institute - Established to enhance operational efficiency of clinical trials from enrollment through completion of clinical trial accrual and reporting. Nancy Davenport-Ennis currently serves as an appointee for a four year term.
- Partnership for Effective Tobacco Policy (PARTNERS) - The coalition includes national organizations committed to reducing and preventing the staggering death and disease caused by tobacco use. The coalition is led by the American Cancer Society-Cancer Action Network, American Heart Association, American Lung Association and Campaign for Tobacco-Free Kids. Legislative efforts have been focused on passing legislation that would grant the U.S. Food and Drug Administration (FDA) common sense authority over the manufacturing, advertising, and marketing of tobacco products. NPAF has been a member since 2008.
- Partnership to Fight Chronic Disease - Established in May 2007 to raise awareness of policies and practices that save lives and reduce health costs through more effective prevention and management of chronic disease. PFCD is a national coalition of patients, providers, community organizations, business and labor groups and health policy experts. NPAF has been a member since 2008. More Information
Since 2004,NPAF has served as the host organization of a 42 member healthcare research coalition, the Global Access Project, that has completed six national research studies to date.