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October 20, 2020

Patient Congress 2020: Finding Community Through Advocacy

 Patient Congress was held on September 23-25, bringing together nearly 100 volunteers, advocacy partners and stakeholders virtually with Patient Advocate Foundation and NPAF staff for a range of interactive sessions focused on community advocacy and engagement. To view the agenda, speakers and sponsors, click here

This year’s event featured a keynote address from guest speaker Mia Keeys, joined by PAF’s Shonta Chambers and Alan Balch, discussing the impact of policy on health equities and how PAF services help tackle financial and social needs gaps that result.  Next, Chris Wilson and Gwen Darien led a narrative medicine workshop.

The next day, a policy panel discussed financial toxicity — a topic that guides so much of our work. Later, volunteers attended a social media “bootcamp” with guest presenter PR expert Rusty Shelton. Rusty explained how using Twitter, Facebook, Instagram and other platforms packs a powerful advocacy punch.

The third day highlighted PAF health services research activities and plans led by Rebekah Angove, followed by focused discussion on NPAF grassroots volunteer advocacy experiences and smaller group deep dives to talk about future research, policy and community outreach advocacy opportunities. Recordings for each of the three days are available here.

Patient Congress 2020 was hosted by Patient Advocate Foundation and National Patient Advocate Foundation with generous support from the following sponsors: Bristol Myers Squibb, Johnson & Johnson, Eli Lilly, Merck, Novartis, Pfizer and Takeda Oncology