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Press Releases

  1. September 6, 2018

    Gwen Darien Appointed to National Research Institute’s Advisory Panel

    Gwen Darien, executive vice president of patient advocacy, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.Darien will join other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize the research it funds. She will also ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers.

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  2. July 16, 2018

    Patient Advocates Call on Trump Administration to Defend Patients with Preexisting Conditions in Court

    ‘We have long worked with patients for whom meaningful health coverage was not possible. They were low-income, sick or had multiple conditions. Each day they lived with the constant worry of a health crisis leading to financial ruin,” said Balch. “By allowing insurers to discriminate against people with preexisting conditions, the Administration will thrust millions of Americans back into that life.”

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  3. June 8, 2018

    Florida Waiver Amendment Request Could Hurt Patients

    Florida’s section 1115 waiver amendment request could have harmful implications for individuals with serious, acute and chronic conditions, according to ten national patient advocacy organizations as they urged the US Department of Health and Human Services (HHS) to reject the proposed waiver amendment.

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  4. June 6, 2018

    NPAF supports the Health Equity and Accountability Act of 2018

    “HEAA’s wide-ranging provisions ensure that federal efforts address the numerous factors that may impede patient access to care, especially proposals that address high-impact minority diseases such as cancer, diabetes and HIV/AIDS where our PAF colleagues are most actively supporting patients,” wrote Rebecca Kirch, NPAF executive vice president of health care quality and value, in a letter of support to the Congressional TriCaucus.

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  5. May 31, 2018

    Virginia expands Medicaid to 400,000 people

    Through the case managers at the Patient Advocate Foundation, we are lucky to witness the profound affect that access to health care has on patients. The results of today’s vote prove that patient voices matter and that bipartisan solutions can be found to the benefit of us all.

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