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NPAF Fall 2018 Policy Consortium

Talking About the Cost of Care in Shared Decision Making: Patient and Provider Perspectives

This fall’s consortium explores the challenges patients and health care teams face in talking the financial burden of serious illness. By exploring cultural taboos and assumptions that inhibit talking about money; investigating patient’s attitudes about the role of their health care providers in these conversations; lack of transparency of health care cost information and barriers to cost conversations in the clinical work flow, we will consider innovative ways of raising the awareness of the importance of understanding the impact of financial toxicity on health care and assisting patients and caregivers with developing the knowledge and skills to facilitate these discussions.

AGENDA

November 29, 2018

 

8:00 – 8:30 am  |  Registration and Continental Breakfast

8:30 am  |  Welcome and Introduction

AlanBalch, PhD
Chief Executive Officer
Patient Advocate Foundation & National Patient Advocate Foundation

Gwen Darien
Executive Vice President of Advocacy
National Patient Advocate Foundation & Patient Advocate Foundation

8:45 am   |  Facing Cancer and the Costs of Care: The Patient Perspective

Suleika Jaouad
Writer, Blogger and Cancer Survivor

Edgar Rivera Colón, PhD
Columbia University, Narrative Medicine Program

9:15 am  |  Talking About the Cost of Care: A Conversation

Thomas & Elizabeth Ema
Patient Perspective

9:35 am  |  Patient Issues and the Cost of Care: The Data

Alan Balch, PhD
Chief Executive Officer
Patient Advocate Foundation & National Patient Advocate Foundation

10:00 am  |  Break

10:15 am  |  Why are Cost of Care Conversations Important?

Moderator:

Gwen Darien
Executive Vice President of Patient Advocacy,
National Patient Advocate Foundation & Patient Advocate Foundation

Panelists:

Shirley Bridgett
Patient Perspective

Jerry Krishnan, MD, PhD
Associate Vice Chancellor for Population Health Sciences
University of Illinois Hospital & Health Sciences System

Susan Perez, MPH, PhD
Consumer Reports

Tammy Taylor, DNP, FNP-BC, MSN
Provider/Patient Perspective

Q&A

12:00 pm  |  Lunch

12:15 pm  |  Talking About Cost of Care: The Physician Perspective

Peter Ubel, MD
Madge and Dennis T. McLawhorn University Professor of Business,
Public Policy, and Medicine at Duke University

1:00 pm  | Incorporating Cost of Care Discussion into the Clinical Work Flow

Moderator:

Mary Jackson Scroggins,
Principal, Pinkie Hugs, LLC, Co-Founder, In My Sister’s Care

Panelists:
Kim Erwin, MDes
Associate Director, Population Health Sciences
Research Professor
University of Illinois

April Barbour, MD, MPH, FACP
George Washington University School of Medicine and Health Sciences

Rita Matthews
Case Manager
Patient Advocate Foundation

Amy Russell, MD
Asheville, North Carolina

Joshua Seidman, PhD, MHS
Senior Vice President
Avalere Health

Q&A

2:15 pm  |  Summary & Closing

Edgar Rivera Colón, PhD
Columbia University, Narrative Medicine Program