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March 13, 2016

NPAF Welcomes Gwen Darien as the Executive Vice President for Patient Advocacy

2016-05-13 | March 31, 2016

(Washington, DC) – National Patient Advocate Foundation (NPAF)is proud to welcome Gwen Darien as the Executive Vice President for Patient Advocacy. In this new role, Gwen will help lead several key activities and programs that link Patient Advocate Foundation’s (PAF) patient service programs to NPAF’s advocacy and policy platforms in ways that will enhance the ability of both organizations to improve access and affordability for patients.

“I am very excited to bring the patient voice and perspective to advocacy and, in turn, to transform individual encounters with our healthcare system,” said Gwen. “By bringing the power and knowledge of the Patient Advocate Foundation’s patient services programs to NPAF’s advocacy and policy initiatives,” Gwen continued, “we can help achieve truly patient-centered, quality and accessible healthcare.”

Gwen brings to NPAF nearly 20 years of senior leadership experience in the health care community. A long-time health advocate and thought leader in the cancer and biomedical research communities, she has extensive publication, education and policy expertise. Most recently, Gwen was Executive Vice President, Programs and Services at the Cancer Support Community, where she oversaw research, programs, education and patient and family services. Gwen was founding editor-in-chief of two award-winning publications for people with cancer and those who care for them—CR and MAMM magazines. She served as the director of the American Association for Cancer Research Survivor and Patient Advocacy Program where she led initiatives to foster enduring partnerships among the cancer survivor, patient advocacy and scientific communities through collaborations, communications and education.

Gwen has served on a wide range of program committees and workshop faculties, including the National Cancer Policy Forum, the Secretary’s Advisory Committee on Health, Genetics and Society, Accelerating Anti-Cancer Agent Development and Validation Workshop and National Human Genome Research Institute, Engaging Communities Around Genomic Medicine, Meeting and Working Group. Finally, Gwen was Chair of the NCI Director’s Consumer Liaison Group and was a member of the advisory board of the Health Advocacy Program at Sarah Lawrence College.

“We are so fortunate to have both Gwen’s passion and her expertise in the everyday struggles of patients as they navigate the complexities of the health care system,” applauded Dr. Alan Balch, CEO of PAF and NPAF. “She will play a critical role in not only helping to explain these challenges in powerful ways but also in linking our patients and their stories, both qualitatively and quantitatively, to advocacy and policy activities.”

About the National Patient Advocate Foundation

The National Patient Advocate Foundation is the advocacy affiliate of the Patient Advocate Foundation, a national non-profit organization that provides free case management and co-pay relief services for patients struggling with chronic, debilitating and life-threatening conditions.  NPAF translates the experiences of patients who have been denied access to affordable, quality health care into national and state policy initiatives.