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Caregiving: Challenges, Joys and Solutions

Spring 2021 Policy Consortium

Most of us will either become caregivers or require care during our lives. This Policy Consortium explores what it means to be a caregiver, how caregivers can support themselves and find support and resources. Our speakers discuss issues ranging from individual lived experiences to policy initiatives designed to help caregivers. You can listen to our podcasts, watch our docuseries or sign up for our campaign, Caregivers Count. You can also find more resources on the Patient Advocate Foundation website.
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Caregiving: Challenges, Joys and Solutions Docuseries

Here for Each Other: A Shared Caregiving Journey

Lisa Cooper and Valerie Oliver focus on the love and joy they brought to caring for Lisa’s father after his Alzheimer’s diagnosis and the special issues that Covid-19 posed to being there for him. They truly exemplify how to provide care at the highest level and make the most of the situation.

Between Two Kingdoms: A Mother Daughter Conversation

Suleika Jaouad and her mother Anne Francey have an intimate chat about how Suleika’s young adult cancer affected them as individuals and deepened their relationship. They also share how writing and art helped them take care of themselves and each other.

Finding Moments of Grace: The Lived Caregiver Experience

Rebecca Kirch talks about her personal caregiving for her brother, mother and now her husband and how she has learned that she has to seek out and ask for resources, to be an advocate for herself and the people for whom she is caring.

Advocates in Action

The NPAF Podcast

A podcast amplifying the powerful stories of individuals and the collective needs of various communities. Listen to our second season highlighting stories of caregivers across the country.

Caregivers Count

Join our next campaign

This June, join us in bringing awareness to the caregiver experience. Whether you’re a caregiver, patient/client or wish to honor a caregiver in your life, we want to hear from you. Sign-up for our Caregivers Count campaign digest to learn more.

Advocating for Family
and Professional Care:
What Quality Care Requires of Us All

Arthur Kleinman, MD author of The Soul of Care. What happens when the personal and professional intersect? Psychologist and medical anthropologist Dr. Arthur Kleinman discusses caring for his wife after her Alzheimer’s diagnosis and how that has impacted his work and vision for the future of caregiving.

Measuring Impact of Caregiver Support in Washington State:
A Model for Policy Change

Bea-Alise Rector, Director, Home & Community Services Division for Washington State Department of Social and Health Services presents on the services and resources her state provides for caregivers. Watch how she shares about the impact her team has seen as a result of their support tools.

Caregiving from Multiple Perspectives Panel Discussion

Gwen Darien, Executive Vice President, Patient Advocacy and Engagement for National Patient Advocate Foundation moderates a discussion with a panel on the critical need for health care providers to care for each other, especially in the Covid era.

The panelists include:
Shonta Chambers, MSW
Executive Vice President of Health Equity and Community Engagement
Patient Advocate Foundation

George Dalembert, MD
Children’s Hospital of Philadelphia

Maureen Fagan, MHA, DNP
Chief Experience Officer
University of Miami Health System

Cheryl Garfield
Lead Community Health Worker
Penn Center for Community Health Workers

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