May 11, 2021
Join us as we celebrate caregivers and examine the trends and policies that affect their lives. We will hear from people who are giving care and receiving it, from policy-makers and data analysts, all to provide a complete picture about the challenges facing today’s caregivers. We will also discuss the critical role that health care providers play in supporting patients, with emphasis on the impact of Covid-19.
Click here to listen to our latest season of our podcast, Advocates in Action to hear about caregiving stories around the country.
Agenda
Welcome and Introduction
Alan Balch, PhD
Chief Executive Officer
Patient Advocate Foundation & National Patient Advocate Foundation
Gwen Darien
Executive Vice President, Patient Advocacy and Engagement
Patient Advocate Foundation & National Patient Advocate Foundation
Advocating for Family and Professional Care: What Quality Care Requires of Us All
Arthur Kleinman, MD
Professor of Psychiatry and Medical Anthropology
Harvard Medical School
Author
The Soul of Care: The Moral Education of a Husband and a Doctor
Between Two Kingdoms: A Mother Daughter Conversation
Suleika Jaouad & Her Mother Anne Francey
Author
Between Two Kingdoms: A Memoir of a Life Interrupted
PAF Caregiving Data Spotlight: An Interactive Presentation
Kathleen Gallagher, MPH
Vice President of Health Services Research
Patient Advocate Foundation
Advocates in Action Podcast Excerpt Interlude
Finding Moments of Grace: The Lived Caregiver Experience
Rebecca Kirch, JD
Executive Vice President of Policy and Programs
National Patient Advocate Foundation
Measuring Impact of Caregiver Support in Washington State: A Model for Policy Change
Bea-Alise Rector
Director, Home & Community Services Division
Washington State Department of Social and Health Services
Caregiving from Multiple Perspectives
Moderator: Gwen Darien, Executive Vice President, Patient Advocacy and Engagement
National Patient Advocate Foundation
Panelists:
George Dalembert, MD
Physician
Children’s Hospital of Philadelphia
Maureen Fagan, MHA, DNP
Chief Experience Officer
University of Miami Health System
Cheryl Garfield
Lead Community Health Worker
Penn Center for Community Health Workers
Shonta Chambers, MSW
Executive Vice President of Health Equity and Community Engagement
Patient Advocate Foundation
Q&A
Advocates in Action Podcast Excerpt Interlude
Here for Each Other: A Shared Caregiving Journey
Lisa Cooper & Valerie Oliver
Caregivers
Summary & Closing Remarks
Gwen Darien
Advocates in Action Podcast Excerpt Interlude