Get Updates

Caregiving: Challenges, Joys and Solutions

Spring 2021 Policy Consortium

May 11, 2021

Join us as we celebrate caregivers and examine the trends and policies that affect their lives. We will hear from people who are giving care and receiving it, from policy-makers and data analysts, all to provide a complete picture about the challenges facing today’s caregivers. We will also discuss the critical role that health care providers play in supporting patients, with emphasis on the impact of Covid-19.
Click here to listen to our latest season of our podcast, Advocates in Action to hear about caregiving stories around the country. 


Welcome and Introduction
Alan Balch, PhD
Chief Executive Officer
Patient Advocate Foundation & National Patient Advocate Foundation

Gwen Darien
Executive Vice President, Patient Advocacy and Engagement
Patient Advocate Foundation & National Patient Advocate Foundation

Advocating for Family and Professional Care: What Quality Care Requires of Us All
Arthur Kleinman, MD
Professor of Psychiatry and Medical Anthropology
Harvard Medical School
The Soul of Care: The Moral Education of a Husband and a Doctor

Between Two Kingdoms: A Mother Daughter Conversation

Suleika Jaouad & Her Mother Anne Francey
Between Two Kingdoms: A Memoir of a Life Interrupted

 PAF Caregiving Data Spotlight: An Interactive Presentation
Kathleen Gallagher, MPH
Vice President of Health Services Research
Patient Advocate Foundation

Advocates in Action Podcast Excerpt Interlude

Finding Moments of Grace: The Lived Caregiver Experience
Rebecca Kirch, JD
Executive Vice President of Policy and Programs
National Patient Advocate Foundation

Measuring Impact of Caregiver Support in Washington State: A Model for Policy Change
Bea-Alise Rector
Director, Home & Community Services Division
Washington State Department of Social and Health Services

Caregiving from Multiple Perspectives
Moderator: Gwen Darien, Executive Vice President, Patient Advocacy and Engagement
National Patient Advocate Foundation 


George Dalembert, MD
Children’s Hospital of Philadelphia

Maureen Fagan, MHA, DNP
Chief Experience Officer
University of Miami Health System

Cheryl Garfield
Lead Community Health Worker
Penn Center for Community Health Workers

Shonta Chambers, MSW
Executive Vice President of Health Equity and Community Engagement
Patient Advocate Foundation

 Advocates in Action Podcast Excerpt Interlude             

Here for Each Other: A Shared Caregiving Journey
Lisa Cooper & Valerie Oliver

Summary & Closing Remarks
Gwen Darien

   Advocates in Action Podcast Excerpt Interlude