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Leadership in Action

Catch up with what we've been doing and find out when NPAF will be at an event near you.

The Impact of the Affordable Care Act on Cancer Prevention and Cancer Care: A Virtual Workshop

March 1-2

On March 1 and 2, 2021, the National Cancer Policy Forum will host a virtual public workshop to examine the impact of the Affordable Care Act on cancer prevention and cancer care. On March 1, Gwen Darien will moderate the second panel, entitled "Coverage for Cancer Services for Individuals Insured by the ACA Marketplace/Health Exchanges and Non-Exclusion of Preexisting Conditions."

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From Collection to Outcomes - Patient Engagement across the RWD/RWE Process

March 23 | 11 am ET

From engaging patients in real word data collection to utilizing real world evidence to increase patient engagement, putting the patients at the center will optimize your impact and improve your project’s methodology, recruitment, and outcomes.

This session will explore:

The patients’ perspectives on RWD and RWE
Patient engagement in research to improve RWD collection, interpretation, and application
The potential of RWE to engage patients in care and decision-making
Building trust through information, education and transparency

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Featured Publications

JAMA Network

Patient Consumerism, Healing Relationships, and Rebuilding Trust in Health Care

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The American Journal of Bioethics

Structural Racism in the COVID-19 Pandemic: Moving Forward

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Academy Health

The Patient Perspective: Can Screening for Cost of Care Issues be Normalized?

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In the News

Curious where NPAF has been quoted in the media? Find out more here.

@NPAF_tweets, 22 hours ago
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RT @paula_span: The problem: Families want to keep elders at home. They need to hire aides to help with care. They can't find any. https://…
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How do we amplify the patient voice to reform #healthcare delivery system and make it more patient-centered? Check… https://t.co/2ptDKx2RUz
@NPAF_tweets, 5 days ago
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RT @ByCaitlinD: I'm seeing a lot of misleading information about what hospitals are legally obligated to offer for charity care or financia…
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RT @Gwen_Darien: Looking forward to participating with @mattleighninger @PublicAgenda @NPAF_tweets https://t.co/QegerwlctA
@NPAF_tweets, 1 week ago
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RT @PaulaMaier3: The Patient Advocate Foundation has brought me so much #stress release! @NPAF_tweets helps me negotiate w/ doctors, hospit…