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The communities we create to help each other are powerful. 

This year, our virtual Patient Congress will celebrate all the ways in which advocacy can support and create communities, showcasing financial and social needs navigation as solutions in times of crisis. Spread over three days in a virtual format so that anyone can attend, we will feature our own experts along with people who have been advocating and innovating for years to empower patients. To register, and to view our agenda and speakers, see below. 

AGENDA 

Day 1 – Wednesday, September 23 

1:00 – 2:00 pm ET | Keynote Address – The Road to Here: The Impact of Policy on Health Inequities

How have policies and practices created health disparities For over 20 years, Patient Advocate Foundation has helped patients and families from marginalized communities overcome these challenges through direct navigation services and support.  

Speakers:
Shonta Chambers, MSW, EVP of Health Equity and Community Engagement, Patient Advocate Foundation
Mia Keeys, MA, DrPh, Director Heath Equity Policy & Advocacy, American Medical Association
Alan Balch, PhD, CEO of Patient Advocate Foundation, National Patient Advocate Foundation

2:15 – 3:15 pm ET | The Power of Patient Stories: Narrative Medicine and Advocacy

Patient stories are powerful. This session will focus on how to hone your story into an influential tool in bringing communities together and advocating for a person-centered health care system

Speakers:
Gwen Darien, EVP of Patient Advocacy and Engagement, National Patient Advocate Foundation
Chris Wilson, VP of Advocacy Communications and Marketing, National Patient Advocate Foundation

 

Day 2 – Thursday, September 24 

12:00 – 1:00 pm ET | Person-Centered Solutions to Addressing Patients’ Unmet Needs: Panel Discussion on Financial Toxicity

This panel will introduce NPAF’s latest policy work focused on addressing financial toxicity from the perspectives of research, equity and advocacy, and how community activation is necessary to raise awareness about this serious issue impacting patients and their families.

Speakers:
Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation 
Shonta Chambers, MSW, EVP of Health Equity and Community Engagement, Patient Advocate Foundation 
Rebecca Kirch, JD, EVP of Policy and Programs, National Patient Advocate Foundation 
Becky Shipp, VP, The Sheridan Group

1:15 – 2:15 pm ET | What Matters to Patients Now: Health Care Challenges We Can Address Together

This session will highlight the health care, financial and social issues that impact patients and their families today, and how NPAF’s community campaigns can help address some of these challenges especially now during the coronavirus pandemic. 

Speakers: 
Nicole Braccio, PharmD, Director of Policy, National Patient Advocate Foundation
Melissa Williams, MPH, Associate Director of Policy and Field Advocacy, National Patient Advocate Foundation

2:30 – 4:00 pm ET | Social Media Bootcamp 

This session is for NPAF volunteers to learn how they can effectively use social media as an advocacy tool to engage their communities on NPAF’s issue campaigns and amplify patient and caregiver experiences. It will also explore the new media landscape and how to be intentional about the personal brand you create there to make a bigger impact.

Speaker:
Rusty Shelton, Founder and Chairman, Zilker Media

 

Day 3 – Friday, September 25

Sessions on this day are geared towards NPAF volunteers, but all are welcome

1:00 – 2:00 pm ET | Involving Patients and Caregivers: Research Engagement and Advisory Action

This session will provide an overview of Patient Advocate Foundation’s health services research program, the patient and caregiver network, potential focus group engagement and other opportunities for participation and advisory action.  

Speakers:
Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation
Gwen Darien, EVP of Patient Advocacy and Engagement, National Patient Advocate Foundation
Rebecca Kirch, JD, EVP of Policy and Programs, National Patient Advocate Foundation

2:15 – 3:15 pm ET | Mobilizing Communities: NPAF Advocacy Engagement Opportunities and Action

This session will highlight different advocacy options for NPAF volunteers and how each can be used to engage communities and directly help patients and caregivers. 

Speakers:
Jamie Trotter, MPP, Manager of Patient Advocacy and Engagement, National Patient Advocate Foundation
Melissa Williams, MPH, Associate Director of Policy and Field Advocacy, National Patient Advocate Foundation

 

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