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Patient Congress 2021:
Health Needs Navigation
AGENDA

Day 1 – Oct 6 | Day 2 – Oct 7  | Day 3 – Oct 8

 

Click here to download a copy of the agenda.

 

Day 1 – Wednesday, October 6

12:00 – 12:15 pm ET | Welcome Remarks

Presented by Alan Balch, PhD, CEO of Patient Advocate Foundation, National Patient Advocate Foundation

 

12:15 – 1:15 pm ET | Session 1. Needs Navigation: The Path to Health Equity

This panel will highlight the work Patient Advocate Foundation has done over the past 25 years in financial and social needs navigation and look ahead to our opportunity to scale needs navigation services through collaborative research work and advocacy.

Speakers:
Moderator: Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation
Alan Balch, PhDCEO of Patient Experience and National Patient Advocate Foundation 
Erin Bradshaw,
 Chief of Mission Delivery, Patient Advocate Foundation 
Shonta Chambers, MSW, 
EVP of Health Equity and Community Engagement, Patient Advocate Foundation
Rebecca Kirch, JD
EVP of Policy and Programs, National Patient Advocate Foundation

 

1:15 – 2:00 pm ET | Session 2a. Patient Advocate Foundation’s Treasure Chest: Accessing and Using Our Educational Resources for Patients and Caregivers

Patient Advocate Foundation and National Patient Advocate Foundation produce a wide-range of high quality educational resources to help patients and caregivers understand and navigate our complex health system. In this session, participants will learn about these resources and how they can incorporate them into advocacy and outreach efforts and programs.

Speakers:
Amy Jeroy, Director of Patient Education and Empowerment, Patient Advocate Foundation
Tracy Hollis, Patient Education Resource Specialist, Patient Advocate Foundation 

 

1:15 – 2:00 pm ET Session 2b. Research Advocacy: Making Person-Centered Research Happen

Lend your lived experience to improve health care. This session will provide an overview of the importance and value of Patient-Centered Outcomes Research (PCOR). Attendees will have the opportunity to join a learning community and participate in ongoing activities to share their experiences with researchers.

Facilitator:
Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation

 

2:15 – 3:00 pm ET | Session 3. Policy Strategies to Advance Needs Navigation

This panel discussion will explore the policy and legislative opportunities to advance NPAF’s needs navigation work while also highlighting current Congressional priorities.

Speakers:
Moderator: Becky Shipp, Principal, Becky Shipp Consulting LLC
Sarah Hudson-DiSalle, PharmD, RPh, Pharmacy Manager, The James Cancer Hospital and Wexner Medical Center at the Ohio State University
Stuart Portman,
 Senior Health Policy Advisor, U.S. Senate Committee on Finance
Jamie Stokley, 
CEO and Founder of Helping Harvest Foundation, Inc and Helping Hands of the Cape Fear, NPAF Volunteer

 

 

Day 2 – Thursday, October 7  

11:30 am – 12:00 pm ET | **Coffee and Connections**

Optional networking time for attendees to (re-)connect with one another and exchange ideas based on the following topic areas:

  • Advancing Health Equity
  • Patients and Caregivers Engaging in Research
  • How to be an effective community advocate

 

12:00 – 12:45 pm ET | Session 1. Person-Centered Research: Bringing Together the Expertise of Patients, Caregivers and Researchers

This panel will feature PAF, PCOR and PCORI engagement examples that showcase how patients are serving as influential research and programmatic partners and advisors, emphasizing existing work and future opportunities for N/PAF volunteerism. introduce NPAF’s latest policy work focused on addressing financial toxicity from the perspectives of research, equity and advocacy, and how community activation is necessary to raise awareness about this serious issue impacting patients and their families.

Speakers:
Moderator: Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation 
Gwen Darien, EVP of Patient Advocacy and Engagement, National Patient Advocate Foundation
Kate Gallagher, MPH, VP of Health Services Research, Patient Advocate Foundation

 

12:45 – 1:30 pm ET | Session 2: Co-Creating Programs with Community Partners and Advocates

NPAF works closely with organizations and advocates with deep roots in their communities to develop our programs and initiatives. This co-created approach is based on respect for their understanding of the people they serve and a belief that we always can learn at least as much from our community partners as we bring to them. This session will highlight examples of these partnerships.

Speakers: 
Gwen Darien, EVP of Patient Advocacy, National Patient Advocate Foundation
Chris Wilson, VP of Advocacy Communications and Marketing, National Patient Advocate Foundation

 

1:45 – 2:30 pm ET | Session 3a. Public Policy Update: What Matters to Patients Now

Health care and financial challenges continue to impact patients and their families in the wake of COVID-19 pandemic. This session will focus on how policymakers are taking action and how we are working together with our advocates to ensure people are at the forefront of these efforts.

Speaker:
Nicole Braccio, PharmDDirector of Policy, National Patient Advocate Foundation
Melissa Williams, MPHAssociate Director of Policy and Field Advocacy, National Patient Advocate Foundation

 

1:45 – 2:30 pm ET | Session 3b. Convening a COVID-19 Learning Community: Focus Group Discussion

Attendees of this session will participate in a focus group discussion about their experience during the COVID-19 pandemic. What do researchers need to know about the patient/caregiver experience during the pandemic (regardless of if you had a COVID-19 diagnosis)? What should research be focusing on to best meet peoples’ needs?

Facilitator:
Rebekah Angove, PhD, VP of Patient Experience and Program Evaluation, Patient Advocate Foundation

 

2:30 – 3:15 pm ET | Session 4: Collecting Evidence to Support Needs Navigation

This session will focus on current work with academic partners using PAF’s direct-services data and discuss the evidence and evaluation needed to advance future policy work.

Speakers:
Moderator: Kate Gallagher, MPH,VP of Health Services Research, Patient Advocate Foundation
Katherine Courtwright, MD, 
Assistant Professor of Medicine at the Palliative and Advanced Illness Research Center, University of Pennsylvania School of Medicine
Don Rosenstein, MD,
Professor of Psychiatry and Medicine, University of North Carolina
Gelareh Sadigh, MD,
Assistant Professor of Neuroradiology, Emory University School of Medicine
Courtney Williams, DrPH,
Cancer Prevention Postdoctoral Fellow, National Cancer Institute’s Healthcare Delivery Research Program

 

 

Day 3 – Friday, October 8

11:45 – 12:00 pm ET | Donna Guinn Outstanding Volunteer Award Presentation

 

12:00 – 12:45 pm ET | Session 1. Volunteer Panel: Advocacy Action and Leadership in Communities 

Participants will hear and learn directly from NPAF volunteers about their advocacy experiences in their communities and how new volunteers can become health leaders or influencers. 

Speakers:
Moderator: Ashley Freeman, MPH, Manager of Stakeholder Outreach and Engagement, National Patient Advocate Foundation
Mike Olex,
NPAF Volunteer – Virginia 
Toni Kay Mangskau,
NPAF Volunteer – Minnesota
Maurine Stuart, BCPA,
NPAF Volunteer – West Virginia

 

12:45 – 1:45 pm ET | Session 2a: Stories for advocacy: Health Needs Navigation Story Collection 

Personal transformative journeys help illustrate the need and motivate others to take action. We need these inspiring stories to help promote financial and social needs navigation services. This session will coach you on how to share your transformative moment to move people to action. 

Speakers:
Martín Diego Garcia, Vice President of Training and Strategic Planning, The Campaign Workshop
Melissa Williams, MPHAssociate Director of Policy and Field Advocacy, National Patient Advocate Foundation

 

12:45 – 1:45 pm ET | Session 2b: Evidence to Action: How Research Partnerships Can Advance the Science of Social Needs Navigation

This session will feature Patient Advocate Foundation (PAF) research partner Hutchinson Institute for Cancer Outcomes Research who have used PAF case management as an intervention for their patients. Speakers will discuss how social needs navigation can lead to improved patient outcomes and make the case for embedding needs navigation services throughout healthcare.

Speakers:
Moderator: Kate Gallagher, MPH, VP of Health Services Research, Patient Advocate Foundation
Veena Shankaran, MD, Co-Director, Hutchinson Institute for Cancer Outcomes Research

 

2:00 – 2:45 pm ET | Session 3. How Effective Organizing Can Lead to Policy and Practice Change

Together, through our grassroots advocacy and research, we can move towards embedding financial and social needs navigation as part of healthcare. This session will showcase examples of how previous successful grassroots campaigns used individual stories to move policy, and how we can apply those strategies to our Health Needs Navigation campaign.

Speakers:
Martín Diego Garcia, Vice President of Training and Strategic Planning, The Campaign Workshop
Mary Mukira, Manager of Grassroots Advocacy, National Patient Advocate Foundation

 

2:45 – 3:00 pm ET | Closing Remarks

 

3:00 – 3:30 pm ET | **Regional Rally**

Optional networking time to connect with fellow advocates in your region

 

 

Join our Patient Congress

October 6-8, 2021