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Patient Voices Blog

  1. June 21, 2019

    Practicing What We Preach: How NPAF is Putting People at the Heart of Health Care

    It’s no secret that here at NPAF our vision is to bring person-centered care everywhere. We want it to be demanded by all patients and caregivers and integrated into all care settings. This vision is why we’ve been such strong advocates for community-based palliative care. The foundation of palliative care is based on person-centered principles: communicating with empathy; involving caregivers; and acknowledging that patient values and preferences are a fundamental part of delivering quality care. For this reason, NPAF supports state and federal legislation aimed at raising public awareness of palliative care and making training available to clinicians who treat people with serious illnesses.

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  2. May 3, 2019

    Health Literacy & Chatter That Matters

    The complexity of understanding and navigating health insurance has dramatically shifted even for most educated, working adults. For seniors, this challenge is exponential. As one of the primary caretakers for my grandmother, this is a reality I know all too well. While she is covered, helping her navigate billing and coverage issues among the many doctors she sees can be a cumbersome task, and I work in healthcare!

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  3. April 25, 2019

    We Can't Afford to Get Sick

    After company layoffs, my family went from being covered by top notch health insurance coverage to seeking health care solutions as uninsured patients.  As a child listening to my mom and great-grandma talk I would often hear the phrase “we can’t afford to get sick.” As a mother of 5 I quickly learned this was not just a catchy phrase.  Unemployment payments were ending and I had to accept some form of employment.  For the first time I was looking for a job with a company that would match my former benefits – not my pay.

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  4. April 3, 2019

    Behind the Scenes Securing Step Therapy Reform in Virginia: Third Time’s the Charm

    Advocating in state capitols can be messy and feel like mayhem – complete with confrontational opponents and sometimes some really harsh jabs you don’t even see coming. The schedule is also unpredictable. You start early and stay late. Your feet get weary pounding the halls trying to hit all the policy makers’ offices. And of course, even though your proposal may be the best policy idea ever, you don’t always get your way with every stakeholder on board accepting your proposal’s every provision. It's all about patience and persistence.

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  5. March 5, 2019

    "No Shame in My Game" - Talking about Cost

    “There’s no shame in my game,” said Shirley Bridgett during our Fall 2018 Policy Consortium in response to being asked if she was uncomfortable initiating cost conversations with her provider. She continued that she’d rather have a discussion upfront about the price of her treatment in the privacy of the doctor’s office instead of being surprised at the pharmacy counter by a co-pay amount that she can’t afford.

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  6. February 15, 2019

    Advancing Person-Centered Care Will Address the Issue of Surprise Medical Bills

    Although I received amazing clinical care from the nurses, doctors and hospital staff, the fact I had to ask multiple people whether the anesthesiologist was in-network was incredibly frustrating. While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered

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