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Patient Voices Blog

  1. March 5, 2019

    "No Shame in My Game" - Talking about Cost

    “There’s no shame in my game,” said Shirley Bridgett during our Fall 2018 Policy Consortium in response to being asked if she was uncomfortable initiating cost conversations with her provider. She continued that she’d rather have a discussion upfront about the price of her treatment in the privacy of the doctor’s office instead of being surprised at the pharmacy counter by a co-pay amount that she can’t afford.

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  2. February 15, 2019

    Advancing Person-Centered Care Will Address the Issue of Surprise Medical Bills

    Although I received amazing clinical care from the nurses, doctors and hospital staff, the fact I had to ask multiple people whether the anesthesiologist was in-network was incredibly frustrating. While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered

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  3. November 7, 2018

    From our CEO: What now? Health Care After the Election

    It is crucial that you continue to advocate for patients in your neighborhood and nationwide. While we may feel secure that a massive change is not about to upheave millions’ of Americans health care, there are still multiple venues in which we must raise our voices in support of access to affordable, quality care.

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  4. June 27, 2018

    UPDATE: PCHETA moves forward

    Today HR 1676, the Palliative Care and Hospice Education and Training Act (PCHETA), passed the House Energy and Commerce Subcommittee on Health by voice vote and was reported to the full committee for consideration. PCHETA would expand the palliative care research, training, awareness and career development that is vital for improving access to palliative care for the millions of seriously ill infants, children and adults in the US who need these services to maximize their quality of life.

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  5. April 11, 2018

    Using Patient Stories to Inform Advocacy

    "The squeaky wheel often gets the most attention and the results," she reminded us, "but we need to make sure we hear the voices of those individuals and communities that are not always heard." 

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