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Patient Voices Blog

  1. April 9, 2018

    Advocates refuse to 'fail first'

    Have you ever gone to the pharmacy to pick up a medication and were told “I’m sorry, we cannot fill your prescription because of your insurance?” As a pharmacist, I’ll say that it’s a common conversation we have that often causes stress, confusion and an overall daunting health care experience for people whether the medication is ultimately covered or not

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  2. November 22, 2017

    She said, "You have to stop fighting because it's killing you."

    Emily Moore was my caregiver for three years while I went through one of the most difficult times of my life. She started when she was 16. She is the most remarkable caregiver I have ever had. She stayed with me through the worse part of my life and there are not enough words in the English language to express my sincere gratitude.

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  3. November 22, 2017

    In Honor of Family Caregivers

    Family caregivers are the ones who ask the hard questions and keep track of the answers. They make the dreaded phone calls to insurance companies making sure a prescription or recommended service is covered. They see the full spectrum of the patient’s experience with illness and treatment outside the clinic walls. Like social workers, nurses, physicians and patients, family caregivers are critical members of the healthcare team, and they should be rightfully appreciated and honored not just this month, but every single day of the year. 

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  4. March 3, 2017

    Palliative Care: What It Means to Me

    I did not meet my grandmother until 2004, after my mom petitioned for her to come to the US to stay with my family so my mom could be her primary caregiver. Nanay lived in the Philippines, where she was born and where my mother was raised.

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  5. September 9, 2016

    Insured and In Debt: The Catastrophic Unfairness of Medical Debt

    States have released premium data suggesting that the rates for many insurance plans are expected to increase significantly next year, much higher than prior increases in 2015 and 2016. As I look at the coverage landscape now and looking ahead, I can’t help but think of what it all means for the patients we serve through the Patient Advocate Foundation (PAF).

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