Get Updates

Press Releases

  1. November 1, 2018

    New National Guidelines Seek to Improve Access to Palliative Care for People Living with Serious Illness

    New national palliative care clinical practice guidelines seek to ensure the millions of people living with serious illness, such as heart failure, lung disease and cancer, have access to vital care that can help meet their needs. The guidelines promote improved access to palliative care, which is focused on giving patients and their caregivers relief from the symptoms and stress of serious illness, is based on need, not prognosis, and can be provided along with disease-focused treatment.

    Read More
  2. September 6, 2018

    Gwen Darien Appointed to National Research Institute’s Advisory Panel

    Gwen Darien, executive vice president of patient advocacy, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.Darien will join other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize the research it funds. She will also ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers.

    Read More
  3. July 16, 2018

    Patient Advocates Call on Trump Administration to Defend Patients with Preexisting Conditions in Court

    ‘We have long worked with patients for whom meaningful health coverage was not possible. They were low-income, sick or had multiple conditions. Each day they lived with the constant worry of a health crisis leading to financial ruin,” said Balch. “By allowing insurers to discriminate against people with preexisting conditions, the Administration will thrust millions of Americans back into that life.”

    Read More
  4. June 8, 2018

    Florida Waiver Amendment Request Could Hurt Patients

    Florida’s section 1115 waiver amendment request could have harmful implications for individuals with serious, acute and chronic conditions, according to ten national patient advocacy organizations as they urged the US Department of Health and Human Services (HHS) to reject the proposed waiver amendment.

    Read More
  5. June 6, 2018

    NPAF supports the Health Equity and Accountability Act of 2018

    “HEAA’s wide-ranging provisions ensure that federal efforts address the numerous factors that may impede patient access to care, especially proposals that address high-impact minority diseases such as cancer, diabetes and HIV/AIDS where our PAF colleagues are most actively supporting patients,” wrote Rebecca Kirch, NPAF executive vice president of health care quality and value, in a letter of support to the Congressional TriCaucus.

    Read More