Get Updates

Press Releases

  1. February 22, 2019

    NPAF Advocates Cheer as Step Therapy Regulations Pass in Virginia

    “We’ve seen the direct impact that bad step therapy protocols can have on the lives of patients and their families. We’ve worked with patients who have had to restart on treatment protocols that haven’t worked for them each time they switched insurers, pushing back their recovery and resulting in job losses, health deterioration and financial ruin. While we understand—and support—reasonable step therapy protocols to keep systemic costs low, there must always be humanity in the protocols so that patients are not denied the treatment that has the best possible chance at curing them,” said NPAF CEO Alan Balch, PhD. “This legislation is great news for people throughout Virginia.”

    Read More
  2. February 19, 2019

    7.3 million people could see higher premiums, warns NPAF

    The newest proposal from the Center for Medicare and Medicaid Services (CMS) would raise premiums for over 7.3 million people and cause over 100,000 people to lose coverage, according to a comment letter submitted to CMS by the National Patient Advocate Foundation. The proposed would also increase limits on out-of-pocket costs for millions of people, including those with employer-based coverage. If the rule is finalized, the maximum out-of-pocket limit would be 2.5% higher, meaning that the family limit in 2020 would increase to $16,400 from $16,000.

    Read More
  3. November 27, 2018

    NPAF Joins 75 Advocacy Groups to Endorse the Clinical Treatment Act

    National Patient Advocate Foundation is proud to endorse HR 6836 the Clinical Trials Act, introduced this week by Representatives Bilirakis and Lujan. The CLINICAL TREATMENT Act would ensure states cover route care costs of participation in an approved clinical trial for Medicaid enrollees with life-threatening conditions. “Clinical trials are often the best, if not only, treatment option for a patient with a serious condition. Because so many Medicaid programs do not cover routine costs, and because Medicaid enrollees are often the last people who can afford any extra expenses, we now have a system in which 42.2 million people are effectively shut out of access to care,” said Alan Balch, CEO of NPAF.

    Read More
  4. November 25, 2018

    NPAF Statement on Proposed Changes to Medicare Protected Classes

    The Department of Health and Human Services (HHS) announced proposed changes to alter rules around Medicare Part D’s “Six Protected Classes.”  If finalized, these changes could dramatically impact access to affordable medications and quality care for Medicare enrollees. We urge HHS to reject any proposed changes that would result in restricting benefits and undermining standards for patients nationwide.

    Read More
  5. November 1, 2018

    New National Guidelines Seek to Improve Access to Palliative Care for People Living with Serious Illness

    New national palliative care clinical practice guidelines seek to ensure the millions of people living with serious illness, such as heart failure, lung disease and cancer, have access to vital care that can help meet their needs. The guidelines promote improved access to palliative care, which is focused on giving patients and their caregivers relief from the symptoms and stress of serious illness, is based on need, not prognosis, and can be provided along with disease-focused treatment.

    Read More
  6. September 6, 2018

    Gwen Darien Appointed to National Research Institute’s Advisory Panel

    Gwen Darien, executive vice president of patient advocacy, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.Darien will join other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize the research it funds. She will also ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers.

    Read More