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Patient Congress

We gather patients, caregivers and advocates in Washington, DC every summer to share their experiences, network and learn together. Learn more and get involved here.

Cost of Care Conversations

How do we improve communications between patients and their health care team?

Policy Consortium

Where Talk Meets Action

Our next Policy Consortium is May 15, 2019. Learn more about this biannual event.

Who We Are

The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses. 

Roadmap to Consumer Clarity

The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.

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NPAF Policy Consortium Spring 2018

The Costs of Care in Shared Decision Making

For Patients

Learn more about NPAF policies and activities related to key patient issues

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For Volunteers

Find out more about NPAF opportunities and events for volunteers.

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For the Media

Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.

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Our sister org, Patient Advocate Foundation, needs your help! Come join the 2019 Insight & Review Panel to share yo… https://t.co/XBgBesShW9
RT @killthebeast: @VASenate We wanted to be sure you saw this oped from @FairHealthVA advocate @HarryGewanter #HB2126, which would protect…
RT @MI_RN: Representing the patient @NPAF_tweets on merit @PCORI merit review panels to give patients voice https://t.co/AQ2eqvQ33U
RT @childrenscause: Learn more about results from a joint survey presented last year by @childresncause & the @NPAF_tweets at the @ASCO Qua…

News and Updates

Person-centered Care Extends to Billing, Too

While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered.

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Skilled Communications Workshop

How can patients better communicate their needs to their providers? What about the needs of their communities? We held a workshop in partnership with the National Medical Association in Philadelphia, PA.

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Virginia Passes Step Therapy Legislation

The bill improves step therapy protocols by creating an expedited, transparent and evidence-based system when a patient’s unique situation requires a deviation from step therapy. NPAF volunteers, along with patients from sister organization Patient Advocate Foundation championed this issue in Richmond and within their home offices,

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