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Patient Congress

We gather patients, caregivers and advocates in Washington, DC every fall to share their experiences, network and learn together. Learn more and get involved here.

Cost of Care Conversations

How do we improve communications between patients and their health care team?

Policy Consortium

Where Talk Meets Action

Our next Policy Consortium is May 15, 2019. Learn more about this biannual event.

Who We Are

The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses. 

Patients are experts too. How do we include patients in the decision-making process?

The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.

The Costs of Care in Shared Decision Making

Policy Consortium Fall 2018

For Patients

Learn more about NPAF policies and activities related to key patient issues

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For Volunteers

Find out more about NPAF opportunities and events for volunteers.

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For the Media

Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.

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RT @ByCaitlinD: I'm so proud of our volunteers and coalition partners who worked so hard to get a little more fairness for patients - #step…
RT @Gwen_Darien: Costs of care are not objective, but the impact on patients, families and communities is very real. @NPAF_tweets #conversa…
RT @JournalofCP: How do you get more patients in #clinicaltrials ? Dr. Alan Balch says #HCPs need to understand what kinds of preconceived…
RT @Gwen_Darien: Words Matter. Context Matters. Honored to have been part of this panel at the VBID Summit. Reducing Low-Value Care May Mea…
Good news! @GovernorVA signed step therapy regulations into law today, assuring that patients can quickly access th… https://t.co/WcFxJQ7s7d

News and Updates

Person-centered Care Extends to Billing, Too

While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered.

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"There's no shame in my game."

“There’s no shame in my game,” said Shirley Bridgett in response to being asked if she was uncomfortable initiating cost conversations with her provider. Why? She’d rather have a discussion upfront about the price of her treatment in the privacy of the doctor’s office instead of being surprised at the pharmacy counter by a co-pay amount that she can’t afford.

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Virginia Passes Step Therapy Legislation

The bill improves step therapy protocols by creating an expedited, transparent and evidence-based system when a patient’s unique situation requires a deviation from step therapy. NPAF volunteers, along with patients from sister organization Patient Advocate Foundation championed this issue in Richmond and within their home offices,

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