Get Updates

Patient Congress

Bringing Patient Voices to Washington, DC

We'll be announcing this year's participants soon - check out this year's exciting agenda!

Cost of Care Conversations

The Impact of Financial Toxicity

How do we improve communications between patients and their health care team?

Policy Consortium

Where Talk Meets Action

Our most recent Policy Consortium was May 15, 2019. Learn more about this event.

Who We Are

The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses. 

Patients are experts too. How do we include patients in the decision-making process?

The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.

The Costs of Care in Shared Decision Making

Policy Consortium Fall 2018

For Patients

Learn more about NPAF policies and activities related to key patient issues

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For Volunteers

Find out more about NPAF opportunities and events for volunteers.

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For the Media

Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.

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It was a pleasure to be on the panel today for #NCCNpolicy @NCCN to share about the importance of defining our prio…
RT @DeeCalhounSMHN: #NCCNPolicy Summit: @CMSGov #Oncology Care Model Refreshing to hear reminders about the importance of addressing com…
RT @DeeCalhounSMHN: #NCCNPolicy Summit @CMSGov Oncology Care Model discussion -Provide oncologists with additional support (systems) to im…
"Lack of timely data adds to burden and healthcare costs." Tracy Wong of @SeattleCCA #NCCNPolicy @NCCN
"Through our patient surveys we've found that our patients want to feel respected, listened to, and that their care…

News and Updates

Practicing What We Preach: How NPAF is Putting People at the Heart of Health Care

NPAF has also launched a new community education initiative called “Can We Talk?”, in which we go directly into communities and hold communication skills-training for patients and caregivers so they are better prepared to talk about the things that matter with the people who matter

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Health Literacy & Chatter That Matters

Premium versus Deductible, In-Network versus Out-of-Network, HMO versus PPO, FSA versus HSA. Do you know the difference in these common terms? What about Copay versus Coinsurance? A little more challenging, right?

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Improved Medical Debt Relief Act Endorsed by Patient Advocates

“An appeals process can take a long time, and unfortunately for many patients, they could still be in that process before even a 180 day deadline,” said Rebecca Kirch, NPAF executive vice president for health care quality and value. “Enforcing and extending a prohibition on reports is the only way to realistically approach this problem.”

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