Roadmap to Consumer Clarity
The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.
Who We Are
The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses.
For the Media
Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.
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Our sister org, Patient Advocate Foundation, needs your help! Come join the 2019 Insight & Review Panel to share yo… https://t.co/XBgBesShW9
RT @killthebeast: @VASenate We wanted to be sure you saw this oped from @FairHealthVA advocate @HarryGewanter #HB2126, which would protect…
#HB2126 bill sponsor @DelGlennDavis and @bowerslanier, an advocate with @FairHealthVA members @VAHemophilia & @VBCF… https://t.co/dVel3DMAAj
RT @MI_RN: Representing the patient @NPAF_tweets on merit @PCORI merit review panels to give patients voice https://t.co/AQ2eqvQ33U
RT @childrenscause: Learn more about results from a joint survey presented last year by @childresncause & the @NPAF_tweets at the @ASCO Qua…
News and Updates
Person-centered Care Extends to Billing, Too
While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered.
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Skilled Communications Workshop
How can patients better communicate their needs to their providers? What about the needs of their communities? We held a workshop in partnership with the National Medical Association in Philadelphia, PA.
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Virginia Passes Step Therapy Legislation
The bill improves step therapy protocols by creating an expedited, transparent and evidence-based system when a patient’s unique situation requires a deviation from step therapy. NPAF volunteers, along with patients from sister organization Patient Advocate Foundation championed this issue in Richmond and within their home offices,
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