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Patient Congress

We gather patients, caregivers and advocates in Washington, DC every fall to share their experiences, network and learn together. Learn more and get involved here.

Cost of Care Conversations

How do we improve communications between patients and their health care team?

Policy Consortium

Where Talk Meets Action

Our next Policy Consortium is May 15, 2019. Learn more about this biannual event.

Who We Are

The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses. 

Patients are experts too. How do we include patients in the decision-making process?

The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.

The Costs of Care in Shared Decision Making

Policy Consortium Fall 2018

For Patients

Learn more about NPAF policies and activities related to key patient issues

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For Volunteers

Find out more about NPAF opportunities and events for volunteers.

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For the Media

Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.

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RT @colon_survivor: Thank you @GwenDarien @NPAF_tweets for inviting me to share my journey and talk about the importance of Personal and Cu…
RT @LUNGevity: Thank you @NPAF_tweets for convening this Consortium to highlight and strategize on barriers and solutions to #EquityInGenom…
Remember, says @RebeccaKirch: patients don't fail treatments, treatments fail patients. #equityingenomics
For some context to the barriers and difficulties facing patients: PAF case managers, on average, make 19 phone cal…
"We wish it was easier to get approval for off-label use from insurers - right now you may have the #RightToTry but…

News and Updates

Person-centered Care Extends to Billing, Too

While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered.

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"There's no shame in my game."

“There’s no shame in my game,” said Shirley Bridgett in response to being asked if she was uncomfortable initiating cost conversations with her provider. Why? She’d rather have a discussion upfront about the price of her treatment in the privacy of the doctor’s office instead of being surprised at the pharmacy counter by a co-pay amount that she can’t afford.

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Virginia Passes Step Therapy Legislation

The bill improves step therapy protocols by creating an expedited, transparent and evidence-based system when a patient’s unique situation requires a deviation from step therapy. NPAF volunteers, along with patients from sister organization Patient Advocate Foundation championed this issue in Richmond and within their home offices,

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