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Patient Congress

Applications are now open for the 20th Annual Patient Congress!

Cost of Care Conversations

How do we improve communications between patients and their health care team?

Policy Consortium

Where Talk Meets Action

Our most recent Policy Consortium was May 15, 2019. Learn more about this biannual event.

Who We Are

The National Patient Advocate Foundation, the advocacy affiliate of the Patient Advocate Foundation, represents the patient voice by articulating the powerful stories of individuals and the collective needs of the community. Our staff and volunteers work at the local, regional and national level to promote access to affordable, quality health care for people with chronic, debilitating or life-threatening illnesses. 

Patients are experts too. How do we include patients in the decision-making process?

The Roadmap to Consumer Clarity in Health Care Decision Making is a special NPAF project designed to propose actionable models for person-centered care for patients and their health care providers.

The Costs of Care in Shared Decision Making

Policy Consortium Fall 2018

For Patients

Learn more about NPAF policies and activities related to key patient issues

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For Volunteers

Find out more about NPAF opportunities and events for volunteers.

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For the Media

Learn more about our impact in recent NPAF press releases, action alerts, and blog posts.

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RT @by_MLW: Letting others know about the importance of palliative care and #pcheta@PatientQoL⁩ ⁦@NPAF_tweetshttps://t.co/SjkZszKdx6
RT @michelekimball: @NPAF_tweets @CoalitionHPC & @PatientQoL are rightly advocating for better access to #PalliativeCare, for the criticall…
RT @by_MLW: Glad to be a part of another Hill Day with @PatientQoL advocating for #PCHETA and improving quality of life for patients and fa…
RT @by_MLW: Thank you @Cline4Virginia for taking the time to meet with us about #PCHETA! It was a pleasure to meet you! https://t.co/QOyckQ…

News and Updates

Person-centered Care Extends to Billing, Too

While I was nervous about my procedure (and devastated over the miscarriage), I was more nervous about potentially being balance billed. I couldn’t help but think that this whole experience should be better for patients. It should be person-centered.

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"There's no shame in my game."

“There’s no shame in my game,” said Shirley Bridgett in response to being asked if she was uncomfortable initiating cost conversations with her provider. Why? She’d rather have a discussion upfront about the price of her treatment in the privacy of the doctor’s office instead of being surprised at the pharmacy counter by a co-pay amount that she can’t afford.

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Virginia Passes Step Therapy Legislation

The bill improves step therapy protocols by creating an expedited, transparent and evidence-based system when a patient’s unique situation requires a deviation from step therapy. NPAF volunteers, along with patients from sister organization Patient Advocate Foundation championed this issue in Richmond and within their home offices,

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